Disabled and Chronically Ill Young Adults' Notions of Freedom 2018

Disabled and Chronically Ill Young Adults' Notions of Freedom 2018

Description

This dataset studied notions that disabled or chronically ill people in Finland had concerning freedom. The study aimed to find out how a possible illness or disability affected feelings and experiences with regard to freedom in life. The data contain 11 transcribed interviews. The study was funded by the Sokra project of the National Institute for Health and Welfare (THL) to coordinate the promotion of social inclusion. In the data, the interviewees shared how their disability or illness affected their everyday lives. They were asked what sort of meanings the interviewees gave to freedom and whether they considered their lives to have freedom. The interviews also discussed, for instance, whether the disability or illness had set limitations or challenges on the participants' lives, future plans or dreams. In addition, experiences were discussed regarding, for instance, schools, health care services and other institutions, and receiving sufficient support and assistance. Additionally, topics covered services, peer support, feelings of being heard, and friends and relatives' attitudes toward getting a diagnosis. Background information included date, gender, age and the illness/disability in question (e.g. epilepsy, cerebral palsy). The data were organised into an HTML index at FSD. The dataset is only available in Finnish.
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Year of publication

2019

Authors

Tietoarkisto - Publisher

University of Helsinki. Faculty of Social Sciences

Virrankari, Lotta - Creator

Other information

Fields of science

MEDICAL AND HEALTH SCIENCES; SOCIAL SCIENCES

Language

Finnish

Open access

Restricted access

License

Other (Not Open)

Keywords

Tasa-arvo, eriarvoisuus ja syrjäytyminen, General health and well-being, Yleinen terveydentila ja hyvinvointi, elämänhallinta, elämänlaatu, quality of life, Equality, inequality and social exclusion, Vähemmistöt, yhteiskunnallinen asema, Minorities, elämänodotukset, injuries, chronic illness, freedom, fyysinen toimintakyky, krooniset taudit, physical disabilities, physical mobility, vammat, vapaus
Disabled and Chronically Ill Young Adults' Notions of Freedom 2018 - Research.fi