Autism in tension between diagnosis and experience: interview and questionnaire data

Autism in tension between diagnosis and experience: interview and questionnaire data

Description

The thesis, working title “Autism in tension between diagnosis and experience”, explores autistic people's perceptions and experiences of autism, diagnostic processes and various support and rehabilitation services. The data collection was conducted during the first half of 2024. Adults who identify themselves with autism were invited to participate in the study. The invitations were distributed through national and local organisations and social media groups. Data was collected through a) thematic interviews (N=24) and b) a questionnaire (N=107). Both sets deal with the experiences and meanings associated with autism, experiences of diagnostic processes and support and rehabilitation services, and well-being. The collection and processing of the data was supported by a grant from the Finnish Society for Disability Research.
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Year of publication

2025

Authors

Yhteiskuntatieteiden ja filosofian laitos

Uisma, Aino Orcid -palvelun logo - Rights holder, Creator

Virkki, Tuija Orcid -palvelun logo - Creator

Ylilahti, Minna Orcid -palvelun logo - Creator

Other information

Fields of science

Sociology

Language

Finnish

Open access

Restricted access

License

Other (Not Open)

Keywords

questionnaire, terveydenhuolto, rehabilitation, kuntoutus, haastattelu, well-being, autismi, kysely, autism, diagnoosi, diagnosis, neurodiversity, neuromoninaisuus, interview

Subject headings

health care