Managing gendered chronic disease: Embodied differences and biomedical knowledge in the treatment of migraine, endometriosis and fibromyalgia (GenDis)
Description of the granted funding
The project examines the management of gendered chronic disease at the intersection of personalized medicine, rationalization of medicine and global drug shortages. It focuses on endometriosis, migraine and fibromyalgia, which are all characterized by episodes of pain and debated in terms of their link to gendered embodied processes. The data consists of bioscience research literature and media accounts of the diseases, online platforms and discussion forums for patients, and ethnographic interviews and observations among patient organizations, clinicians treating patients, governmental and public health officials involved in drafting treatment guidelines, representatives of pharmaceutical industry as well as two biomedical research institutions. The aim is to understand the emerging uses of the concept of gender and embodied differences in increasingly personalized and rationalized medicine as well as the changing preconditions of living with a gendered chronic disease.
Show moreStarting year
2021
End year
2025
Granted funding
Other information
Funding decision number
339143
Fields of science
Other social sciences
Research fields
Nais- ja sukupuolentutkimus
Identified topics
health care