The rapidly growing number of people with dementia has created an urgent need to develop socially sustainable care and to engage persons living with dementia and their informal carers in defining it. In this project, a consortium of researchers from the University of Jyväskylä, the Finnish Institute for Health and Welfare and Tampere University outline socially sustainable care for persons living with dementia and their informal carers.?Based on qualitative and quantitative data, we examine what it means to live with dementia, what kind of social and institutional barriers and risks of care poverty are faced by persons with dementia and their family carers, and how their participation and agency should best be supported on the level of daily life, social participation and care services. In addition, we contribute to the theoretical research on the social relational model of dementia, which is used as a basis for definitions of socially sustainable care for persons with dementia.

2023

2027