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Carers of persons with dementia and the social consequences of caring

Year of publication

2025

Authors

Van Aerschot, Lina; Halonen, Ulla; Leinonen, Emilia; Kröger, Teppo

Abstract

Caring affects the social relationships of unpaid carers and the families of those being cared for in multiple ways. Care for a person with dementia often becomes demanding and requires reconciliation of caring with a personal life, work and social relationships. Carers are also prone to care poverty. In this article, we examine the social consequences of providing care for a person with dementia. Based on 21 diaries written by carers, and using the concept of ailment as an analytical lens, the analysis broadens our understanding of how unpaid care can have manifold social repercussions on a carer’s life.
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Organizations and authors

University of Jyväskylä

Leinonen Emilia Orcid -palvelun logo

Van Aerschot Lina Orcid -palvelun logo

Kröger Teppo Orcid -palvelun logo

Halonen Ulla Orcid -palvelun logo

Tampere University

Van Aerschot Lina Orcid -palvelun logo

Halonen Ulla

Publication type

Publication format

Article

Parent publication type

Journal

Article type

Original article

Audience

Scientific

Peer-reviewed

Peer-Reviewed

MINEDU's publication type classification code

A1 Journal article (refereed), original research

Publication channel information

Volume

9

Issue

3

Pages

504–520

​Publication forum

85407

​Publication forum level

1

Open access

Open access in the publisher’s service

No

Self-archived

No

Other information

Fields of science

Public health care science, environmental and occupational health; Sociology; Social policy

Keywords

[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Publication country

United Kingdom

Internationality of the publisher

International

Language

English

International co-publication

No

Co-publication with a company

No

DOI

10.1332/23978821y2025d000000122

The publication is included in the Ministry of Education and Culture’s Publication data collection

Yes